About us

HIP is an independent forum for parents and carers of children with disabilities in Hackney. We are a small but expanding group with big ambitions to make parents and carers of disabled children a force to be reckoned with. Parents need a bigger say about services for their children. We are fed up of hearing about families denied the support and information they need.

Caring for a disabled child can be hard. We can become dispirited and feel we have no control over our lives or the services supposed to help us. HiP wants to see parents and carers back in the driving seat,

HIP is here to make sure parents get a real say about services, advice, support and information for their children. We’ve had quite an impact already. If you want to get involved, get in touch. We’d love to hear from you.       

HIP report on Parent-carers’ experiences of services for disabled children and young people in Hackney (Click button to download)

HiP response to HLT Transport Policy December 2014 (Click button to download)

Special Educational Needs: Your Child’s Transfer to the New System – HFT Meeting on 23 October 2014 at The Attic, Hackney Picturehouse (Click button to download)

Who we are

HIP was set up in March 2009. Our aim is to involve parents in influencing and shaping services for children with disabilities. HIP is led by and for parents and carers and has a large network of members. At the moment our organising committee is small but active.

Meet a few of us below (we are very friendly and approachable). We are keen to get more parents and carers involved so HIP start get parents involved in even more services that that affect our children’s lives.

Back in February 2009 there was a consultation about short breaks with Hackney parents and carers of disabled children for Hackney Ark. The consultation brought parents in touch with lots of other parents. It was also clear many families affected by disability in Hackney were missing out on vital support or were being offered services that were not fit for purpose. Parents’ views were generally ignored – we were invisible.

At the end of the consultation the parents involved were determined to carry on trying to make strengthen the voice of Hackney parents – especially in the local corridors of power. A year has passed since HiP was launched and we are proud of what we have achieved so far but there is still so much more to do. So please get involved and make HiP a force to be reckoned with in Hackney.

What we do

We are always looking for parents and carers to help in the following areas. But any help is welcomed, as HIP is all about getting as many Hackney parents and carers involved in making things better for all of our children.

Are you interested in – 

Or you may have skills in social media, law, public speaking, journalism, design and photography. Or, you could just have knowledge about SEND or more.

To download the minutes of our latest meeting click the download button.

HIP - What have we done

Since our launch in March 2009, HIP has built up a large network of parents and carers. So far we have managed to get parents and carers on the following committees-

We have also been busy making contact with people who make the decisions about our children’s services- including HLT, Children’s Services at the London Borough of Hackney and CCG which make up Education, Health and Social Care.

Our aim is to involve parents in influencing and shaping services for children with disabilities. HIP is led by and for parents and carers and has a large network of members. At the moment our organising committee is small but active.

We are keen to get more parents and carers involved so HIP start get parents involved in even more services that that affect our children’s lives.

Back in February 2009 there was a consultation about short breaks with Hackney parents and carers of disabled children for Hackney Ark. The consultation brought parents in touch with lots of other parents. It was also clear many families affected by disability in Hackney were missing out on vital support or were being offered services that were not fit for purpose. Parents’ views were generally ignored – we were invisible.

At the end of the consultation the parents involved were determined to carry on trying to make strengthen the voice of Hackney parents – especially in the local corridors of power. Many years have passed since HIP was launched and we are proud of what we have achieved so far but there is still so much more to do. So please get involved and make HIP a force to be reckoned with in Hackney.